Abstract
Clinical data registries are platforms to extract, store, analyze, and disseminate
large amounts of clinical data. The type of data contained in clinical data registries
varies by the registry, and may include patient demographics, clinical examination
findings, imaging and laboratory results, procedures performed, and patient-reported
outcomes. When large numbers of participants submit data to a clinical data registry
the data can then be analyzed in aggregate to answer new clinical questions. Analyses
on the data may be performed to show outcomes over time, compare procedures, evaluate
care patterns, among others. With the launch of an otolaryngology-specific clinical
data registry, Regent, facial plastic and reconstructive surgeons have the opportunity
to participate in a clinical data registry for the first time. Through broad participation
in the registry, the specialty has a chance to optimize patient outcomes in a manner
never before possible.
Keywords
clinical quality - registry - value